This is the first in a series of guest blogs written by Pat (Trish) Roe. Trish is a Parkinson’s Care Partner and Rock Steady Boxing Volunteer. Pictured are Trish and her husband Charlie in a Rock Steady Boxing Class @ Evolve Fitness Lab.
Your partner has just been diagnosed with Parkinson’s Disease (PD) and perhaps you are feeling overwhelmed, traumatized, and lost. You know this diagnosis is going to impact both of you. You just don’t know how or when. Welcome to the unknown world of the Care Partner. And from one CP to another, let me tell you that it doesn’t have to be bad.
Now you know what your partner is fighting
First of all, there is relief in finally knowing why they have that tremor or seem unsteady on their feet? Perhaps you have noticed that their handwriting is becoming tiny and illegible. Or that people seem to be ignoring them when they you are out in public, turning to you instead? What you both are experiencing is shared by over 1 million other people with Parkinson’s and their Care Partners worldwide as these are all symptoms of this horrible illness.
Make use of resources
As you begin this new journey, know that there are many of us out here who are already on our way. We have been on this shared pathway for many years and understand what you may be facing. The most important thing we can tell you now is that there are support groups for your person with Parkinson’s (PWP), and groups for you as the Care Partner. The best thing you can do for yourself right now is reach out. No one needs to navigate through this alone. Visit our friends at PRO (Parkinson’s Resources of Oregon- www.parkinsonsresources.org ) for information about groups and classes available in the Vancouver area. I look forward to meeting you soon!